Beautiful Morning

Sky enjoying some down time and Dora

WonderPets and a peek outside

Bed head :)

New videos

A must see very cool video

The joy of new toys and other things

Skylar has entered a new phase, the Cars phase, everything is Lightning McQueen and Mater... He still LOVES his Spongebob and Blues Clues, but Cars is taking center stage. Today he got his new Lightning McQueen bubble machine and his GEO track train. So we have been busy bees.

Moni and Chan got the WASL test scores today and both passed with flying colors!!!! Its so great to have wonderful smart kids. Chan went with some friends Tuesday to get the new HALO game, and let me tell you homework and chores have been getting done at super light speed so he can get online and play with his friends. Moni is looking forward to staying over night at one of her best friends houses Friday, and then they will stay with us on Sat.

My dads been up quite a bit the past few weeks, its been great to see him and visit. He has been working on his RV while Joyce (my step mom) and my little sis tour Europe.

Im starting to get my game plan and mind set to home school Sky, he knows so much I dont want to bore him, I hope to start next week.

Got to love it

Sky ready to take on the world

I am so blessed to have such a wonderful little man!

there is nothing better then a child who wakes up each and every day with a smile on... it makes the start of each day so wonderful :)

Chan and Moni start the first full week of school this week, so far both seem to be happy with school, classes and not so happy with how heavy the backpacks are. I swear they are both going to need a chiropractor soon.

Were getting ready for fall, next weekend we will have a few trees taken down, should make some good fire wood. Keiths busy with work and trying to get our place ready for winter.

Other then that, not to much is happening. we hope you all have a great week!

Time to think

So as most of you know we are looking at a duel flu season this year (yikes) The regular flu is enough to send me into germ Phoebe shock, but two...Dear Lord.... I know to most of the world I would appear to be a freak about the flu, always reading and watching, checking flu maps and getting CDC and WHO updates, but in the world in which I live, it is very necessary.

This year we are changing things up a bit... Skylar will not have a teacher come to the house this year and he will not have speech come to the house this year. The risk of them bringing something with them from the school is just too high, and to be honest... its not worth the risk. So I will be teaching Skylar this year, and I have to say he is doing great. He knows all the basics and then some, we are working on writing numbers and his ABCs, so far so good. And his speech has improved so much over the summer, he is putting 7 words together, and they make sense.

Moni and Chan will have to come home everyday this year and shower and change. normally we dont start this until about the end of November, but because the flu is already hear and going, we are doing it now. They also are not allowed to use my phone, and have t clean their phones every day. Backpacks will stay outside on the deck until I Lysol them and let them sit for 10 mins, then they can come in the house.

I have been doing my regular flu cleaning all year this year, so I feel pretty confident about our hard surfaces, door knobs and light switches, I also clean remotes regularly, vacuum and dust every day and do my best to keep all germs at bay.

So the downer of this is holidays, to be honest I dont know if we will be having anyone over and in the house until spring... yes spring.

I just wish that people would try to prevent the flu and not just prepair for it, Im getting pretty tired of reading news articles about schools preparing for the flu, but no one is taking the time to educate our children on how to prevent the flu. I can only hope and pray that it does not hit home and that my family will stay healthy.

So please, everyone: wash your hands, cough and sneeze into your elbow, and if your sick (stay home)

Crazy Pants Friday

Need I say anything more!

I LOVE them!!!!

Long weekend ahead, no plans. Moni and Chan are gone this weekend, so its just Keith, Sky and I... maybe we should just go for a nice drive, zoo maybe if the weather is nice :)

we will see, until then Im going to enjoy my Sky and his crazy pants!

Growing up

Miss Monica

Mr Chandler

Both ready to go


Mr Skylar

today is Moni and Chans 1st day of high school, they are growing up so fast... I am so proud of my kids, they are all such great kids!!!!

A few pictures

Wednesday we will all head out to do some shopping, look out Target hear we come, Moni and Chan need a few more things before school starts on thursday, and Skylar says he needs some new toys. Should be fun!!!!

Sky and his mail box

Sky reading his car book, look Grandpa I still Love the story reader!!!!

What a day, a perfect day

Thomas, Kris, Chan, Moni, Audrey and Batman (Anne-Marie)

Moni, Audrey and Anne-Marie

End of Summer fun


boys will be boys, the three Amigos

Chan and Kris

Moni braced for impact, I wish i would of waited about 15 seconds to take this, the balloons bursting was pretty good.

Keith and Sky playing on the you tube

pleasantly surprised that they had every request

My Moni and I

What a perfect way to end the Summer break and start a fresh new year of school (High School)

We have had such a wonderful day, Moni and Chan both have 2 friends over, the day has been spent with water balloon fights, swimming, running playing, rock band in the shop, hamburgers and hot dogs (and yes for those of you who know how picky my Moni is, she ate a hot dog, put wouldnt let me get a picture), the evening was spent roasting marsh mellows and making smores and watching a movie on the big screen in the shop.

Skylar enjoys all the kids running through the house, I think he likes all the noise! Sky, Keith and I spent a good part of the day surfing you tube for videos for Skylar, he would tell us who and what to find (it was so much fun).

A frog and a boy

Keith was feeding the alpaca when he saw and captured this huge frog for Sky, it was big enough to roll its self around on the floor, and as you can see Sky loved it!!!

Its Official

Moni and Chan a week before kindergarten, little munchkins!

Tomorrow makes it official, Moni and Chan are high schoolers, wow where in the heck does time go??? I still remember the first day of kindergarten, the spirit assembly's, waiting for the bus to drop my baby's off at home. I guess time really does fly when you are having fun.



Moni spent the day with a group of girls she has gone to school with since kindergarten, she had so much fun, and they all made planes to meet by the flag poll in the morning before they start orientation (so cute)



Chan spent the day running around with Keith, buying things for school. i think they were gone most of the day.



Sky and i had fun hanging out and playing his new cars game (Thanks daddy) it was and still is a good day!

Boeing Family Day

This morning we packed the van and headed to Everett for family day at Keiths work, Keith and i loaded Skys power chair so he could have some freedom. We left at 9:30 and got home a little before 2:00. Sky enjoyed the 777 and 747, but I was not allowed to take pictures of this most important trip. This was the first time in a LONG time that we all went out and about, the first time for Sky seeing his daddys work, the first time for seeing airplanes, and his first time he was able to drive some where other then home. So I'm a little bumbed that I could not record this day for him. In all we had a good time, way to many people for me. After family day Keith ran Moni and Chan into the Boeing store and bought a few treasures, and we headed for home. it was good to see Sky out and enjoying so much, i could tell it was allot for him to take in, but it was good for him, me, all of us!

Apt update

Skys ENT apt went good, we loaded up and Sky says "ice cream!" so funny. Anyways we got there and Keith noticed that I forgo one very important piece of equipment, the cable that goes from the battery to the inverter to run Skys v-pap (yep I spaced it) so Keith being the smart guy he is rigged up a cable and hooked it to the battery and it ran Skys v-pap (I swear I married MacGyver) So we got there and had our picture taken, new policy at Childrens, waited about 5 mins and went in for our apt. Skys stoma looks great, his ears, nose and throat looked good too. They switched his trach to a 4.5 and sent us on our way. But I have to say a 15 min apt turned out to be an hour apt. Anyways Sky enjoyed a little nap on the way home, and now hear we are looking forward to Moni being home tomorrow :) wrestling tonight and family day on Sunday at Boeing.

Seattle hear we come

well were ready for our little day trip to Seattle Childrens, all of Skys stuff is packed, Im just waiting for him to finish his milk so I can clean him up and get him dressed. We will be seeing ENT today, they will assess if he needs a bigger size trach and doing his blood gases. Im always nervous heading into Childrens, I think allot of it stems from our first experience 3 years ago. It was a very scary place. So keep us in your thoughts, I hope it is a smooth apt, in and out, no trouble with equipment, no breathing problems with Sky, no nasty traffic and I hope we will have a nice warm nurses and doctors.

little update

waiting for daddy to get home Friday night Sky feel asleep with his toy airplane his daddy gave him before he left on Sunday.

Well Sky and i survived everyone being gone, we enjoyed some mom and Sky time, it was great. Keith had a good time in St Louis and made it home Friday night. Chandler came home from his moms Friday night too, so everyone is home but Miss Moni. My hearts puzzle will be complete again on Saturday!!!! Sky has an apt with ENT on Friday, so Keith and I will be driving up to Childrens in Seattle for that apt. But they say its a fast apt 15 mins (ya right, Ill believe it when I see it) We might have to go up a size in trachs, Im not 100% what that will take, but Im hoping its just a matter of placing the new size in and away we go, its a 15 min apt so Im pretty sure thats what will happen. Other then that Moni comes home Sat, we have family day at Boeing on Sunday...

What a Sunday, pictures and short video

I dont know who was looking at who the longest, but Sky had about 5 mins and was ready to go, which was fine, one of them looked a little scared by the power chair, and I didnt want Sky to get spit on.

When we started out it was cloudy, and not 15 mins into our adventure, out came the sun...

Sky just saw a helicopter fly over, I dont think he was believing what he was seeing! IT WAS PRETTY LOW TOO, SO HE HAD A GOOD LOOK!!!

My favorite picture, we were on our way over the bridge to see the alpaca.

Chans at his moms, Moni is at her dads and Keith flew out this morning for St Louis, so its just me and the dude... So far were doing great, ventured out side to try out Skys new head support... and I LOVE IT!!!! It worked perfectly, there are some serious rocks and holes and divots on our property, Sky drove through them just fine. In the bad areas he had mama drive all the while telling me how to drive. "go slow mama, dont go fast mama, to fast to fast," it was very cute.

imagine if you can Sky driving this with out the head gear, it was pretty scary.

Our SMA candle lighting

Sky was sleeping, but as soon as I took the picture he opened his eyes. We light this candle to honor all the brave kids who fight SMA every day and for those who have earned angel wings. Together we can and will find a cure.

Ya for new head support system

we just love it, now Sky can be out in the yard, drive through the property and ride in the van in his power chair.

SMA Awareness Month

August is national SMA Awareness Month, on Aug 8th around the world people who have been touched by SMA will light a candle for those who have earned angel wings and for those who struggle and fight everyday to win the battle against SMA. Please join us Saturday August 8th and light a candle for hope, love and a cure.

For other ways of helping us find a cure and for support you can go to: http://www.smasupport.com/ or http://www.fsma.org/

Thank You for helping us remember all the little ones who have earned wings and for supporting Sky and all his friends.

This year we will light our candle in memory of Logan Harman, Logan Watts, Edan Foley and Cisco Rodriguez . All brave kids who fought so hard to beat SMA but in the end they earned angel wings and now run and play SMA free in the heavens above. http://www.our-sma-angels.com/