Our power went out tonight, as soon as it did Moni got some books and got down next to Sky and started reading. I dont think Sky minds power outages :)
I just LOVE the holidays, time with my family, smells of yummy food, trees and gifts, cookies and nuts, hot spiced sider and eggnog for Keith and Chan...
well Im pretty sure Skys cold is gone, I can hear him perfectly and can clear him with one set of cough and suction. But Ill keep up with everything for another day or so to be sure. Moni and Chan are both gone for the weekend, so it will just be Sky, Keith and I home for Halloween. Nothing planned, other then carving our last pumpkin and maybe watching a good movie. Skys never really done the trick or treat thing (to cold hear at the end of October) I didnt even get him a costume this year (for that I feel kind of bad, he likes to dress up) Maybe Ill buy him a few after Halloween so he can play dress up through out the year. Anyways I hope you all have a GREAT Halloween!!!!
Hello, My name is Skylar. I live in Stanwood, Washington. I am a very happy little guy. I have SMA TY II SMA is the number one killer of children under the age of two in the world, there is no cure, so please pray they find one soon!! 1 out of every 6000 births is a child born with SMA, it robs the body of movement and functions (my mommy says it like being paralyzed but you can feel everything) and it takes 2 adults with the gene to have a child with SMA, scary thing is 1 out of 40 adults carries the gene.