Thursday, May 31, 2007

Way To Go Daddy


mommy says that today and tomorrow are big days for you, and that tomorrow you will doing a new job at Boeing as Manager... Congratulations, I know your going to do a great job. And be very successful in your new line of work! Im very very proud of you and I cant wait to give you big loves tomorrow before you start your new job as manager!!! Love Skylar

Mommy also says that maybe we can get that pony sometime this summer or a new puppy ;)

Sunday, May 27, 2007

Auction Sneak Peak

This is the one anly snaek peak Im going to post until the auction on June 28th, its just a few of what Ive done, I hope you all enjoy my drawings, and please let everyone you know to view the auction on June 28th!!!! Hugs Sheila

Thursday, May 24, 2007

Sending Another Angel

This morning little Dakota lost her life with SMA. No more struggles, no more worries, just freedom now. Look over your family little one as they will miss you so!

Wednesday, May 23, 2007

Skylar Update

Ruthie, Mom and Keith
Moni Loven up on Sky

Grandmas in the kitchen

Chandler and Auntie Ruthie making MONSTER Cookies (YUM)

My beautiful Skylar enjoying the birds around the pond

Skylar and mama dancing

Snoqualmie Falls

Auntie Ruthie and Skylar

Gandma Eichele and Skylar

We had a very good week with Grandma Eichele and with Auntie Ruthie. Even though Sky was under the weather for half of the visit. He is doing much better now, still a little buggery but tuns better then 3 days ago. We hope that grandma will come back to see us again and that Auntie Ruthie comes back too, its kind of quite in the house with them gone.

Tuesday, May 15, 2007

Earning His Wings

Today we morn the passing of another beautiful child Jackson, he lost his fight with SMA today, our thoughts and prayers are with his family. Run free little one! You will be missed!!!

Monday, May 14, 2007

Silent Auction Information

I will post my silent auction on June 28th. My goal is to raise awareness of SMA. To raise money for a few SMA Charity's, Support SMA, FSMA and Fight SMA. All our outstanding resources for family's dealing with SMA. I would like to be able to raise enough money for each organization to support a child with proper equipment, such as a V-pap or Bi-pap, cough assist or suction machines, all of these are essential to the life of a child with SMA, and there are many children with SMA who cant afford this equipment. Also if anyone would like to donate to our son Skylar, it would be greatly appreciated and put to a good cause, a power chair and some smaller things is greatly needed to allow him to become able to roam around and in a way be free from the floor.

Any donations need to be written out to the organization, FSMA, Support SMA or Fight SMA, they can be mailed to my home address 4312 314th Place NW Stanwood Wa 98292 and I will at the end of my auction submit all of them to the correct organizations. Any donations to Skylar can be made out to Skylar Eichele and mailed to our home address 4312 314th Place NW Stanwood WA 98292 we will set up an account for him after the end of the silent auction.

I can only ask that you browse through my sons blog and see his journey over the past year. he is a fighter and a lover with a smile that never ends. Help us help him and so many more children fighting SMA.

Thank You
Sheila Eichele
Sky's mama

Grandma Is Coming To Visit

Well in about 2 hours Keiths mom and sister should be getting off a train in Everett, they are coming to stay with us for a week. Ruth Keiths mom has never got to meet Skylar and its been almost 5 years since last seeing Monica and Chandler, and his sister Ruthie has never been to Washington before. It should be a great visit. Ill post pictures later this week. And Tuesday Skylars story will be in our local paper, Ill post the online link to the story on Tuesday.I hope you all had a wonderful Mothers Day and enjoyed those precious little gifts!HugsSheila

Thursday, May 10, 2007

Skylars Interview Was Today

Skylar had his first interview today, even though he was sleeping. Everything went really great! They will be doing Skylars story this coming Tuesday, and they are going to forward it to the Herald and KIRO. So we are pretty excited!

Wednesday, May 09, 2007

New Words

Skylar is just so cute!!! We went for our mid morning walk today and on our walk we saw some geese, ducks, frogs and a few very pretty flowers. Well Skylar is picking up on saying new things just like that. He said Duck, frog and flower today. He has the sweetest little voice. Im so proud of him!

Tuesday, May 08, 2007

Our Interview With the Paper

Skylar holding a butter cup today
Skylars new wheels, mush better for going on walks around the property! Thanks Dad
(look how big hes getting)

Skylar and mama floor time

Skylar and sissys pinwheels, he loves this thing!

I just spoke with the Stanwood Camano paper today and we will be having Skylars interview on Thursday at 12:30. Im so excited, and nervous at the same time. its a great way to let people know about SMA, and a great way to let them know about the silent auction Im having to raise money for SMA at the end of June.

Skylar is doing really great! he is talking like crazy. he loves to tell you he is 2, Spongebob and Patrick are always cute to hear, Dada is a favorite word, Uh Oh (I Love that one) yeah and no of course, he can say sissy (with out the s in front of it so its issy) kitty and puppy are almost there and today he learned how to say duck and of course the best one Love you!!!

Sunday, May 06, 2007

Friday, May 04, 2007

Angel Bharat

Angel Bharat lost the fight with SMA on April 19th just 12 days before he would have had his first Birthday! Run free little one, watch over your parents. you will be missed!

Thursday, May 03, 2007

Today Was a Good Day

Today was such a great day, Im working on some art work that Ill be selling in a silent auction at the end of June to raise money to help find a cure for SMA, and to also help families with SMA that need equipment for there children. So Ive been on the phone with Childrens and family, well today I got an email from our local paper and they are going to do a front cover story on Skylar and SMA. Ill know tomorrow when the interview will be, but I cant wait... So today has been a GREAT day, and tomorrow seems to be even better. Big Bug Hugs Sheila

Wednesday, May 02, 2007

A Few new Pictures of Skylar

Look mom no tube....
OMG Sky LOVES to draw, he must draw everyday for atleast 2 hours.


Me and my boy! I sure do love this little man, Sky your the best!!!