Thursday, September 29, 2011


 Sky on Sunday, starting to feel better
 trying to find his smile
 yesterday afternoon, other then the nose candy, he is 100%
Mr Man a few mins ago showing off his new Woody figure, that daddy sure knows how to make a kids day!

Wednesday, September 28, 2011

CRAZY week

Last Tuesday Sky came down with a tummy bug, this was a first for him, and wow!  I have never had a tummy bug, not even as a kid so I had no idea what was to come.  Poor kid never ever threw up as a baby, so this to was a first for Sky, and Ill just say he was not impressed!  He did ok the first few days with eating and staying hydrated but that came to a screaming halt Friday.  So when daddy got home I placed an NG (feeding tube)  down Skys nose.  Now he was not to happy about that, but Im pretty sure he is grateful that I did.  The other day he told me mama Thank You for feeding me!  I know what a kid...  So today is day 5 with the NG and Sky is doing amazing!  He feels good, looks good and has had a great day!  Now comes the task of getting him to eat on his own again, I cant just take the NG tube out, not until he can eat orally all of his daily needs, so we are looking at a few weeks (I think)  slow and steady wins the race in this house!  Most of all, Sky never fails to impress me, his strength and will and love is just wonderful!

Wednesday, September 21, 2011


 1st day of school, 11th grade oh my!!!
 Sky kicking my butt at candy land
 and yes he likes to win!!!!
 crazy day, we had about 5 ot 6 blue birds on the deck enjoying some dog food!

 all he wants for Christmas is his two front teeth!
Sky and I

Wednesday, September 07, 2011

so what have we been up to?

School has started, Moni and Chan are juniors, one more year and they graduate!  Sky has started his home schooling, we started yesterday with just a little refresher.  This kid is so smart, I just love it! 

Sky has been to see his pulmo, and he looks great and sounds great!  his pulmo just cant get over how well he has done!  Makes this mama feel pretty good!

We have been dealing with insurance, or the lack of I should say....  I am not impressed with these people, but seriously what can I do?  Praying we will have all of Skys new equipment in a few weeks!

We have been getting ready for the Walk N Roll at Greenlake in October, that is going to be so much fun!  I have some awesome family who no matter what have always been there for me and my family, and Im so proud to have them walk with us, team Sky is going to be HUGE!

Sky has been playing his little big planet with Jojo, this has become a highlight of his day.  The boys build things and destroy things, its pretty cool to see him interact, even if Jojo is in LA.  I love it!

Sorry no new pictures, I seem to have misplaced my card reader for my computer, sure hope it turns up soon!  Id like to dump my camera!

Friday, September 02, 2011

Team Sky

please help us to reach our goal to help find a cure for SMA!  we look forward to walking with everyone on the 16th of October!