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This morning we meet with Senator Mary M Haugen, and she is going to help us get a bill on the table for infant blood testing for SMA. She was a very wonderful lady, and we truly enjoyed her visit. Its always nice to have a beam of hope :) I wish I would of got a pic of her talking with Skylar... I dont know what I was thinking, thats ok, as Im sure we will meet with her again!
3 comments:
such wonderful news, so glad the meeting went well
Love the shades Skylar, you are one cool dude
hugs, Heidi & Junior
your so cute Skylar!!! look forward to hearing ore about the bill!
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