Wednesday, September 15, 2010

Perfect as perfect gets

This morning I got Sky up at 5:00am, he had a bath and got ready for our day at Childrens in Seattle. He did awesome! and right now is sitting in his red chair watching you tube and monster trucks, rocken out.

It is so much work to pack everything up and make such a trip, but we did it and we did well, nothing was forgot, and our trip went great. Sky saw pulmo, trach clinic and his nutritionist. Everyone said "he looks amazing" "he is doing so great" and "keep up the good work guys". It always amazes me when they find out he has not been back to the hospital since our discharge 4 and half years ago, I like that fact, and hope and pray we can keep it up!


Anonymous said...

Thanks for the update. I've been wondering how the day went for you all. You are all Amazing! And, yes keep it up:)


Junior said...

such awesome news. so nice when we get good news at appts.

Anonymous said...

Hey! Thanks for dropping off Anna's supplies. :-) We were actually down at Children's ourselves today. No appointments, just a cool meeting with two other children with Anna's syndrome (Cri du Chat.)

I suppose we should meet up sometime - - the guy from Children's home health said you are just 6 blocks from us? Sorry we missed you . . .