this was posted on FB by my friend Sarah, she is the mommy to an SMA child like me, this is so perfect it made me cry when I first read it!
Dear mommy,
I have felt your tears, falling on my face.
Someone else might think they are tears of sadness, because of what I can't do.
... I KNOW DIFFERENT.
I know those tears pour from your heart out of gratitude for me, because of what I CAN do : I can love everyone in the purest form possible. Unconditionally. I can be judged, but will never judge in return.
I know different because I feel, in your hugs and kisses, that I'm perfect just the way I am.
I have seen you hang your head down in shame, when we go out on adventures.
Someone else might think you are ashamed of having a child like me.
I KNOW DIFFERENT.
I know you are ashamed of the grown-ups who ignore me, yet talk happily to all the other children. The grown-ups who won't look you in the eye, but stare at me, when they think you don't see. I know different because I've seen the many, many more times you have raised your head up high, with pride, because I'm yours. : )
I have heard you whispering desperate prayers at night. Someone else might think you are asking God to make me a typical kid.
I KNOW DIFFERENT.
I know you are thanking Him that I got to be here, with you, for another day- exactly how I am. I know different because I have heard you ask me never to leave you. And I have heard you cheer for me, every single day of my life- you tell me I don't need to be typical to be amazing, I just need to be here.
I know you have a big job, taking care of me.
I know your body hurts, because I'm getting so big.
I know that more than anything, you want to hear me say your name.
And I know you worry that you aren't good enough, and that you will fail me.
BUT I KNOW DIFFERENT MOMMY.....
I know that even on your worst days, you will always be enough for me, and I will always love you more than you know
I have felt your tears, falling on my face.
Someone else might think they are tears of sadness, because of what I can't do.
... I KNOW DIFFERENT.
I know those tears pour from your heart out of gratitude for me, because of what I CAN do : I can love everyone in the purest form possible. Unconditionally. I can be judged, but will never judge in return.
I know different because I feel, in your hugs and kisses, that I'm perfect just the way I am.
I have seen you hang your head down in shame, when we go out on adventures.
Someone else might think you are ashamed of having a child like me.
I KNOW DIFFERENT.
I know you are ashamed of the grown-ups who ignore me, yet talk happily to all the other children. The grown-ups who won't look you in the eye, but stare at me, when they think you don't see. I know different because I've seen the many, many more times you have raised your head up high, with pride, because I'm yours. : )
I have heard you whispering desperate prayers at night. Someone else might think you are asking God to make me a typical kid.
I KNOW DIFFERENT.
I know you are thanking Him that I got to be here, with you, for another day- exactly how I am. I know different because I have heard you ask me never to leave you. And I have heard you cheer for me, every single day of my life- you tell me I don't need to be typical to be amazing, I just need to be here.
I know you have a big job, taking care of me.
I know your body hurts, because I'm getting so big.
I know that more than anything, you want to hear me say your name.
And I know you worry that you aren't good enough, and that you will fail me.
BUT I KNOW DIFFERENT MOMMY.....
I know that even on your worst days, you will always be enough for me, and I will always love you more than you know
1 comment:
Thanks for sharing that. I have a lot of thoughts and feelings about that, and the other article that a Mom to a child with Tay Sachs (sp?) wrote about being a Dragon Mother. You've probably read it on Tripp's blog. Maybe I'll share my thoughts with you via a message on Facebook. Gosh, I sound cryptic, huh? Anyhoo, I know that every minute, second, I thank God that I have Joseph here with me. I'm sure you feel the same way about Sky :)
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