i guess Im getting bad at updating! There really has not been much going on. Everyone is doing wonderful and we are all good, enjoying the little bit of summer we have or had.
we still have not heard from our insurance on nursing, and we ordered new equipment for Sky, sure hope they dont long to getting him what he needs. If we were to buy what he needs out of pocket it would be over 35,000.00 (crazy huh?!?!)
Sky has been enjoying his online game playing with his friend Jojo, he looks forward to playing online with him every day, now if I could just figure out how to join them to play we would be set! Im not the best game player !!! but I try....
we went out yesterday to do some fun shopping but after we got into the store Sky got a big buggy and his suction machine thought it would be a good time not to work correctly, so we did the best we could with what we had, cleared him as much as possible, and headed home asap.... he is good and enjoying the new toys daddy went back to get!
today I am heading to NOAH, its an animal shelter about 2 miles from us, Sky is certain he needs a kitten so he can name it Tom! Got to love this kid~
Last night we lite our candle for SMA, for all the wonderful kids we know like Sky who fight each and every day to just be kids! and for those precious kids who have lost the battle to SMA... May we find a cure, is all we ask and all we pray for!
we still have not heard from our insurance on nursing, and we ordered new equipment for Sky, sure hope they dont long to getting him what he needs. If we were to buy what he needs out of pocket it would be over 35,000.00 (crazy huh?!?!)
Sky has been enjoying his online game playing with his friend Jojo, he looks forward to playing online with him every day, now if I could just figure out how to join them to play we would be set! Im not the best game player !!! but I try....
we went out yesterday to do some fun shopping but after we got into the store Sky got a big buggy and his suction machine thought it would be a good time not to work correctly, so we did the best we could with what we had, cleared him as much as possible, and headed home asap.... he is good and enjoying the new toys daddy went back to get!
Last night we lite our candle for SMA, for all the wonderful kids we know like Sky who fight each and every day to just be kids! and for those precious kids who have lost the battle to SMA... May we find a cure, is all we ask and all we pray for!
2 comments:
Oh Sky I love your toothless grin. Sounds like you are having a great summer. So neat that you can play online games with Jojo.
Hugs
Hi Sheila. Got your e-mail. Guess what? Joseph just got the switch a few minutes ago! We havent figured everything out yet, but I will let you know soon, for sure, if it works well for him. I cant wait for Joseph to play the game himself. I can't stand the R1 button and the jumps.
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