Hi Sheila, Your pics of Sky are beautiful! his smile is incredible. Thank you for keeping up with Emily and all your prayers. She is doing so much better so we hope to be home soon. You are an incredible mom and wonderful support to all of us SMA families. Happy New Year and give Sky a kiss from me. He must get kisses all the time with a face like that : ) Diana Lee
Thank you so much for signing our CB site. I am just viewing Skylar's site for the first time. He is adorable!!! I pray he continues to do well during this cold and flu season. Have a wonderful week!
-Jennifer Patrick www.caringbridge.org/visit/babyloganpatrick
Sky looks awesome in his powerchair!! I can't believe he's almost three! What a joy he must be for you and your family!! Keep up the great driving Sky! Keep your Mommy on edge when you do those donuts because you know how to drive! Love, Diana and Emily
Hey Skylar I hope you have a wonderful day tomorrow. have fun!!! We looove all your videos, you are the best !!! (((HUGS))) from Texas The Silva Family
Hi, I am just viewing Skylar's site for the first time. I clicked on his picture from Connor Robertson's blog site. Skylar is absolutely beautiful. I love that b&w picture. It is priceless! Thanks for sharing your story. Sue
Hi Sheila. Thanks for keeping in touch with your posts on Shira's blog, i appreciate it. Sky is looking great. If you don't see me on the smapetition its because I can't fill out the darn form because i live in canada and there are no prompts that support that (even though i'm also an american). Anyways. Have a good day. Brad
Hi Sheila, I meet your Dad & Joyce on the cruise, we were table mates and we really enjoyed their company. They were included in the best part of the cruise. We had many laughs and made so many memories with them.
I have been reading your blog and your Skylar has stolen my heart. He has the most kissable face and eyes that just make you smile. I am reading up on SMA. I hadn’t heard of it before reading your blog. He is now part of my daily prayers and a cure is going to happen.
I have 12 grandchildren and 2 in the process of adoption. I hope to someday meet your precious young man. He is amazing to watch in his chair on the video. If you get a chance I will give you my children’s blog address and you can check in on my grandchildren. They have both been on amazing adventures to other countries to adopt.
http://www.johnsonangels.blogspot.com/ This is my daughter Crystal to Malawi Africa. She was gone 40 day instead of 12 because America messed up the paper work for her adoption. God worked many ways in many lives those 40 days.
http://oatsvallteam.blogspot.com/ This is my daughter in law Gwen twice to China and now to Ethiopia. She also has a special needs child from china that will be having many surgeries to rebuild her head and repair where she was beating in the head and burned while in China. God is good and he will heal the little children. I believe in miracles and I will keep praying for your miracle with Skylar.
I will post again later I will be coming back for more pictures of your Angel he has taken over a piece of my heart. I know you don’t know me but please give that sweet face a kiss for me and tell him he has a MiMi in Tennessee that is praying for him daily.
Living under the wing of Angels resting in Gods arms.
hello, it was quite random that i came upon ur blog. this is the first time i view this blog. :) i think sky's is a very brave young man with such lovely smile. i will definately keep post on this blog.
Thanks for all of the prayers and support that you have sent our way. Skylar is BEAUTIFUL. It looks like he got a lot of good candy for halloween. Know that we are praying for your family as well.
Hi Sky- My name is Peggy and I live in Yakima. I have no idea how I started reading about you, but I check on you every day. You are so handsome and your Mom is amazingly dedicated to you - most of us moms ARE, but you are extra special so she has to be too. I am 51 and my "kids" are 24 and 21. They kind of poke fun at me for the things I do on the computer, but HEY that's me! Hope you feel better soon!
Hey guys, what kind of stander did Sky get? Has he gotten a chance to try it out yet? Hopefully Taysen's fever and HR will subside now that he's on the antibiotics. well, glad all is well with the lil guy.
Hey Sky you are a cutie!! I am just visiting from Devon's blog! You have the greatest smile! We will pray for you and your family that they will find something fast to be able to help you and all the other children with SMA!! Keep smiling!!
Hey Sky - My name is Jim & I work with your Dad. He is a great guy. Your a lucky boy to have him for a Dad. He just shared your Blog with me. Enjoy your new chair!
My name is Jody Riggs and I have a 13 month old boy named Karson with type 1 SMA. I have heard sky's name from other people and I found your blog from another SMA fam. I just wanted to say how cute and sweet sky is.
I just found your blog today. It's wonderful. It's fun to see your family and see how well Skylar is doing. He's grown up so much and is such a cutie, as are your other two!
I was sorry to read about Chandler. I hope he's OK. Tell the kids hi for us.
You can check out my blog on Blogspot at Three Minutes to Nine if you'd like.
Sheila and Skylar! I am not sure if you remember me, my name is Amanda. I was one of your ICU nurses many years ago. I have never forgot about you and your family and I was just thinking about you and decided to check your blog. I cannot believe how big you are! You have grown so much! I am so happy to see how well you are doing. You look very happy! Just wanted to say "hi" and let you know I am thinking of you! Best wishes to you and your family. Nurse Amanda
Praying for a cure in 2009 
Praying for a cure in 2009 
35 comments:
Hi Sheila,
Your pics of Sky are beautiful! his smile is incredible. Thank you for keeping up with Emily and all your prayers. She is doing so much better so we hope to be home soon. You are an incredible mom and wonderful support to all of us SMA families. Happy New Year and give Sky a kiss from me. He must get kisses all the time with a face like that : ) Diana Lee
Skylar is such a handsome little boy and has a wonderful smile. Keeping him in our prayers.
Thank you so much for signing our CB site. I am just viewing Skylar's site for the first time. He is adorable!!! I pray he continues to do well during this cold and flu season. Have a wonderful week!
-Jennifer Patrick
www.caringbridge.org/visit/babyloganpatrick
Sky looks awesome in his powerchair!! I can't believe he's almost three! What a joy he must be for you and your family!! Keep up the great driving Sky! Keep your Mommy on edge when you do those donuts because you know how to drive!
Love, Diana and Emily
Hey Skylar I hope you have a wonderful day tomorrow. have fun!!!
We looove all your videos, you are the best !!!
(((HUGS))) from Texas
The Silva Family
Skylar - you are such a handsome and happy boy! We love looking at your pictures.
Have a great weekend!
Kate and Mary
I can't wait to hear how your trial goes. Thinking of you...
Hi, I am just viewing Skylar's site for the first time. I clicked on his picture from Connor Robertson's blog site. Skylar is absolutely beautiful. I love that b&w picture. It is priceless! Thanks for sharing your story.
Sue
What a great moment of reading blogs.
We should have a great day today.
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that doesn't happen everyday. wish you all the best.
Such a nice blog. I hope you will create another post like this.
To the author of this blog,I appreciate your effort in this topic.
Hi Sheila. Thanks for keeping in touch with your posts on Shira's blog, i appreciate it. Sky is looking great. If you don't see me on the smapetition its because I can't fill out the darn form because i live in canada and there are no prompts that support that (even though i'm also an american). Anyways. Have a good day. Brad
i'm also into those things. care to give some advice?
It could widen my imagination towards the things that you are posting.
Hi Sheila,
I meet your Dad & Joyce on the cruise, we were table mates and we really enjoyed their company. They were included in the best part of the cruise. We had many laughs and made so many memories with them.
I have been reading your blog and your Skylar has stolen my heart. He has the most kissable face and eyes that just make you smile. I am reading up on SMA. I hadn’t heard of it before reading your blog. He is now part of my daily prayers and a cure is going to happen.
I have 12 grandchildren and 2 in the process of adoption. I hope to someday meet your precious young man. He is amazing to watch in his chair on the video. If you get a chance I will give you my children’s blog address and you can check in on my grandchildren. They have both been on amazing adventures to other countries to adopt.
http://www.johnsonangels.blogspot.com/ This is my daughter Crystal to Malawi Africa. She was gone 40 day instead of 12 because America messed up the paper work for her adoption. God worked many ways in many lives those 40 days.
http://oatsvallteam.blogspot.com/ This is my daughter in law Gwen twice to China and now to Ethiopia. She also has a special needs child from china that will be having many surgeries to rebuild her head and repair where she was beating in the head and burned while in China. God is good and he will heal the little children. I believe in miracles and I will keep praying for your miracle with Skylar.
I will post again later I will be coming back for more pictures of your Angel he has taken over a piece of my heart. I know you don’t know me but please give that sweet face a kiss for me and tell him he has a MiMi in Tennessee that is praying for him daily.
Living under the wing of Angels resting in Gods arms.
In Jesus sweet name my new found friend
Karen
hello,
it was quite random that i came upon ur blog. this is the first time i view this blog. :)
i think sky's is a very brave young man with such lovely smile. i will definately keep post on this blog.
hugs + kisses
Thanks for all of the prayers and support that you have sent our way. Skylar is BEAUTIFUL. It looks like he got a lot of good candy for halloween. Know that we are praying for your family as well.
The Brewers
www.caringbridge.org/visit/corneliusbrewer
Hi Skylar. I just found you from Juniors blog. My name is Sarah. You are so cute. I use to have a trach too. I will be thinking about you.
Hi Sky-
My name is Peggy and I live in Yakima. I have no idea how I started reading about you, but I check on you every day. You are so handsome and your Mom is amazingly dedicated to you - most of us moms ARE, but you are extra special so she has to be too. I am 51 and my "kids" are 24 and 21. They kind of poke fun at me for the things I do on the computer, but HEY that's me! Hope you feel better soon!
Thoughts, concerns, worries,compassion,prayers, from Louisiana! Hi, Sky! Tickles to you!
Hey Skylar! This is our first time visiting your blog.
My Mom is wonder if your Mom might like to do a bit of guest blogging over at www.5minutesformom.com.
Hugs and hive fives!
Parker
I like the new digs :)
Hey guys, what kind of stander did Sky get? Has he gotten a chance to try it out yet? Hopefully Taysen's fever and HR will subside now that he's on the antibiotics. well, glad all is well with the lil guy.
Hey Sky you are a cutie!! I am just visiting from Devon's blog! You have the greatest smile! We will pray for you and your family that they will find something fast to be able to help you and all the other children with SMA!! Keep smiling!!
Hey Sky - My name is Jim & I work with your Dad. He is a great guy. Your a lucky boy to have him for a Dad. He just shared your Blog with me. Enjoy your new chair!
Hi,
My name is Jody Riggs and I have a 13 month old boy named Karson with type 1 SMA. I have heard sky's name from other people and I found your blog from another SMA fam. I just wanted to say how cute and sweet sky is.
Love The Riggs
Skylar you are such a handsome little man!!
You are in our prayers!!
Alyson
p.s. Thanks for stopping by our blog and leaving such a nice comment! :0)
I accidental stumble upon this blog and can't close the site without leaving a comment.
I'm praying for a cure and praying for a miracle that one day little Skylar will grow up as a normal & healthy young man.
Awww so cute!!
p..s I left you an award on my blog :0)
Hi Sheila,
I just found your blog today. It's wonderful. It's fun to see your family and see how well Skylar is doing. He's grown up so much and is such a cutie, as are your other two!
I was sorry to read about Chandler. I hope he's OK.
Tell the kids hi for us.
You can check out my blog on Blogspot at Three Minutes to Nine if you'd like.
Ginger
Sheila and Skylar! I am not sure if you remember me, my name is Amanda. I was one of your ICU nurses many years ago. I have never forgot about you and your family and I was just thinking about you and decided to check your blog. I cannot believe how big you are! You have grown so much! I am so happy to see how well you are doing. You look very happy! Just wanted to say "hi" and let you know I am thinking of you! Best wishes to you and your family.
Nurse Amanda
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