I Hate SMA

SMA is such a cruel, cruel disease. It takes so much from little ones who never fuss, little ones who never ask for what they could never do. Every SMA child I have ever seen is just happy, they are such beautiful children. The past two weeks have been very hard on my SMA family, princess Skylar age 7 lost her fight with SMA and flew home to be with our Lord and to be with so many other angels that have earned there wings. Today Lily age 6 went to be with all the other SMA angels. It just breaks my heart to have so many precious little ones die from this disease. How my heart aches for each and every family member. I pray that guidance is given to those in charge of research, for those in charge with finding a cure. We need one desperately!