Just A Few New Photos

Its been an exciting week for Skylar, we have been swinging our hips and moving our upper and lower legs more this week. The movements may be slight to someone who does not know him, but to us it BIG!!! These maybe little things, but they are incredible things.... Inch stones.....He is such a happy little man. I couldnt ask for a more perfect baby. Ive been in contact with Stanford, Im just waiting for a call back in regards to getting Skylar into this trial. We can only hope and pray, that this is something that soon becomes reality!!!! This week we have managed to lower Skylars V-Pap settings, and he did so wonderful with it. Next week I will lower them again, and if he tolerates it then we will have to see what his doctors want to do, they want him at 16 but I think he can go lower, he is pretty tuff..... This week we have a check up at Childrens with pulmonary, so hope and pray that all goes well. They will be checking his blood gases this time to see how he is doing with the changes, so pray for low numbers, mid 30 to low low 40's. Other then that Skylar is doing very very well, we couldnt be more proud of him!