Cuddles

My Little Picasso

Sky right after a bath, all nice and clean and fresh!!!
Sky and his dino's...

Look mommy got you a surprise....

Blowing raspberry's

Its my girly girl!!!

Look out world I think I have the next Picasso

For Veronica I hope This Helps Lia!!!

Skys New Floor Mat and Silly Faces

Im sorry I cant pay attention to you right now, Im really interested in this mouse and the computer, maybe later face.

Curious face... Can you see it in his eyes? What are you guys doing?

Skylars face after he saw that he was moving the cursor on the computer with his new little mouse!

Hand made with lots of love by mommy... I dont like seeing Sky on the floor with just a blanket, and with having his new chair his down time has been cut in half... But either way laying on the floor looks so hard. So I made him his very own Spongebob flannel floor mat, it has a 2 inch removable foam piece (that way I can wash the cover I made) Anyways Skylar just loves it, its soft and comfy, he keeps rubbing his hands down the material.

Space?

Keith, Chan and Moni had a blast Saturday when they went to Boeing family day in Seattle, they got to check out the old plant and play games and after wards went to the museum of flight.

We just love Sky's chair!!!

Its so good to see Sky sitting up and so happy!!! He just loves hanging out with his daddy!!!!

Tech time with my daddy... I LOVE the green glow pens dad, they are pretty cool!!! Oh yeah I cant for get I LOVE listening to music on your computer too!!!

Skylar you are so inspiring to me, your wonder and beauty is just so amazing!!!

I just love my Sky so much!!!!

Oh come on mom... do I really look like a bunch of pasta???

Thanks mama for wrapping my Popsicle with coban, its so cold with out it!!!

Its the simple things in life that mean the world to me!!! It has been forever since Skylar has been able to be up and in the kitchen with his mama. Well not anymore, its so nice to have him in there with me playing with spoons and cups, having snacks... Ive missed this so much!!!

New Pictures

Skylar has had so much going on the past few days... We have been getting up into the new chair, and he loves it. It gives him a whole new perspective... Ive been taking it slow, to see how much up time he would tolerate, and so far so good... he enjoyed going into the kitchen this morning and surprising his daddy, who was working at the kitchen table. We had a very nice lunch hear at the house on Tuesday, we had our pediatrician, 2 nurses, our 0 to 3 coordinator and our OT over. It was so nice for everyone to meet and for Skylar and I to tell them all Thank You for standing behind us and helping us with everything Skylar had needed. So other then that, its just been play time as usual hear, just with a few bigger toys!

Skys New Chair

Well its hear... Its not the colors we ordered, but he has it and we can work with the pink. By the time Im done with it, it is going to be the one and I hope only Spongebob Kid Cart... We will see, give me a week or so. But dosent he look good, he is getting so big!!!!

7th Graders

WOW I remember the first day of kinder garden, how time flys!!! Just look at my big kids all ready and excited for the first day of school as 7th graders.
Chandler all ready to go

Moni all ready to go

ITS his eager face!!!!

She so pretty!

And I know, Sky isnt a 7th grader, but he looks like such a big kid in his daddys hat!

Our Bath Chair

We got Skylars bath chair this after noon, I LOVE it!!! Not only does it help him out at bath time, but until his tumble form chair gets here it also works great as a regular chair for him to sit up in. All it takes is a nice flannel airplane blanket and comfy seat and Sky was asleep for 3 hours!!!

Fast Asleep

I had to laugh today when Skylar was eating his pickle, and then the next thing I know he is fast asleep...

Equipment

Well after several months of waiting and wondering when and if Skylar would ever get his equipment, i found out on Friday that our insurance has approved all of his stuff. So we are looking at maybe 3 weeks for the kid cart, and the tumble form chair should be hear in about 5 weeks. Now the exciting thing is, I meet a SMA family online who has the power pack for the kid cart and they are going to ship it to us. This means when we get it, we will be able to hook it up to the kid cart and Skylar will be in control of his own movement through the house!!!! We are hoping that by Thanksgiving he will have it down, and that he will be zipping through all on his own... I cant wait to see how he does. Our OT and 0 to 3 coordinator think he is more then capable, and so do we. So now its just being patient and waiting until it all gets hear.

Nap Time Surprise

Some of you may remember that Skylar LOVES balloons, and his daddy and I made a promise to him over a year ago after coming home from the hospital, we promised him balloons. Well we have kept to our word Skylar has enjoyed so many different balloons over the past year but these two are special. Keith found them while shopping and of course couldnt pass them up. Spongebob and Patrick are as big if not bigger then Skylar. Shhh... Sleeping so peacefully....
And Im sorry I didnt get a picture of his reaction to the gigantic balloons, but let me tell you he was more then happy! He opened one eye and saw Spongebob, closed his eye and the opened both eyes and just smiled!!!!

New Pictures of Sky

Well I havent posted an update on Skylar in a while. Skylar is doing great, he is now 38 inches long and 28.6 lbs and he is only 28 months old, something tells me he is going to be a big guy like his daddy.... We had our pulmo apt, and that went great, they were very impressed with his resp and lung strength (Thank God).. We have had our 0 to 3 meeting, and they are very impressed with where he is at cognitively, counting to ten and knowing his colors, and he almost has the alphabet down with an object for each letter. So that went good. Still having a battle getting Skys equipment. The bath chair I ordered 6 months ago should be hear in a week, and the kid cart was ordered last week, I was told about 3 more weeks for that, and our tumble form chair is still about 5 weeks out. Thank You for all the help with medical need letters, they should help my OT get her letter done in a timely matter ( I would think). Other then that my older two are getting excited for 7th grade this year, school starts in 3 weeks (yeah).... Keiths job is going very good, he loves it... He is in Seattle now, but found out that he will be heading back to Everett in about 2 weeks. I cant wait, then he will only be 20 mins from home instead out an hour and 20 mins. So thats the Skylar Eichele family update, nothing to exciting and nothing to bad, just mid stream I guess.

August Is SMA Awareness Month

We light these candles tonight in memory to all the little ones who have earned there wings, run free and play hard little ones!!! And we also light them for all the children in the world fighting SMA, stay strong and win!!!