Awesome day seeing Monster trucks

going to the track to see the monster trucks!

All of us with the driver of Captain USA Rodger Stidell (very nice guy)

hanging out with Kevin Lewis, Mike Pappas, Gary Schott, Darren Bast, Kelvin Ramer, Justin Cluster and Roger Stidell, these guys were so great, they signed posters for Sky gave him a monster truck, awesome group of people, we hope to one day see them all again!

Chan, Sky, Moni and The Patriot driver Kevin Lewis (very nice guy)

Sky and Keith with Tropical Thunder

Keith, Sky and I with King Crunch

our host Tony, what a guy! I could not Thank you enough

The family at the end of the dinosaur exhibit, very cool dinos!

the dude of the hour and his cotton candy, you cant go to the fair and not get Sky cotton candy!

We had such an AMAZING day, could not have been better, Tony from the Evergreen State fair treated us like stars. We got to get up close to see all the trucks, hear them fire up, meet the drivers and crews. We gave them SMA bracelets and they all are wearing them at tonight's show, where they will talk about our visit. I only wish we could of stayed for the show, but Sky has to eat and he does that best at home, and I was not happy with my suction machine, so we headed home after a couple of hours. These guys were awesome, it was like we all knew them and had been friends for years, I hope one day to take Sky back to an actual show.

Monster Trucks

Tomorrow is our big surprise for Sky, we will leave here about 3:30, when we get to the fair we will meet with Tony, he is making sure Sky can get in to see the trucks up close. Sky is going to be so excited!!!! and after the monster trucks we will be going to a very cool Dino exhibit. Ill post pictures tomorrow night! Ive got everything packed and charged, so all we have to do is get in the van and go! All Sky knows is its a BIG surprise, and we will be able to get some cotton candy.

mellow week or two

Skylars Monster truck paintings

Sky is doing awesome, he has had LOTS of mommy time this past week, Moni and Chan are both gone. Chan comes home Sunday and Moni comes home on the 27th. Sky has been playing Little Big planet (with the help of mommy) and he has been having a blast. We are looking forward to a few last of summer outings in the next few weeks. First and most important the Monster truck show on the 27th, with a Dinosaur exhibit before the truck show. I havent told him, I want it to be a surprise!!!

We have school shopping to do, and lots of school things to get done, they do pictures before school starts hear. Moni will be starting drivers Ed (praying the first class dosent fill up or she will have to do the second one) either way I can not believe she will be driving soon (wow)

August is SMA Awareness month

Make an on-line slide show at www.OneTrueMedia.com

MJ made this video, she is an amazing person who like Sky has SMA. Love you MJ, Thank you for making such a beautiful video!!!!!

Our Candles

Our candle from Diana Tucker

The photo was taken right before Skylars diagnoses of SMA, and the Blessings is from Auntie Ruthie.

Skylar with his SMA candle

Candle from Chandler (he is at his moms)

Candle from Dean and Moe

Candle from Kristina Axeford

Candle from Rutie, Larry, Sara and Ivan

Candle from Sherie

Candle from Shelley and Dale

Last night we lite our SMA candle or all SMA angels hear on earth and in Heaven, I was told by another SMA parent that in fact the candle lighting in next Saturday, but I know other SMA family's that did the same as us last night. What are you going to do. We will light our candle all week in remembrance of all the SMA children. Thank you everyone who lite a candle in honor of Skylar and his SMA friends!!!!

Light Your Candle

August is SMA awareness month and tonight is the SMA candle lighting, please light a candle for all the children who have lost the fight with SMA, and for all the children who continue to fight SMA. Tonight Skylar will light his candle for ^Logan^ we miss him so much, such an awesome little man, love you Logibear!!!!!

Our day at the fair

Today was a great day, Moni had a few friends sleep over last night in anticipation on our local fair. This morning we packed everything up, waited for Grandpa to get here, and we headed out. Sky had a great time, we played a few games, bought some cotton candy, got Skys face painted and checked out the animals. The big kids stayed until 8:00 riding rides and hanging out with friends from school. It has been a wonderful day, I cant wait for the 26th, we are taking Sky to an even bigger fair to see Monster Trucks (shhh he dosent know)

Join Families of SMA at Safeco Field

Families of SMA
Kansas City Royals vs. Seattle Mariners
Friday, August 6, 2010 – 7:10 p.m.

Join Families of SMA at Safeco Field for some exciting Major League Baseball action on Friday, August 6! .

DEADLINE TO PURCHASE: Thursday, August 5 at NOON.

GAME DATE: Friday, August 6 vs. Kansas City Royals – 7:10 pm

PRICING:
• $18 View Reserved Seating (normally $22)
$7 from each ticket goes to Families of SMA (Spinal Muscular Atrophy) – Northwest Chapter

TO ORDER UP TO 24 TICKETS:

CLICK HERE to purchase tickets or copy and paste this address below into your web browser:
https://oss.ticketmaster.com/html/go.htmI?l=EN&t=mariners&o=1697466&g=930

1. Select “Find Tickets” then enter SMA as your promo code and click “Verify”
(ignore the “e-mail address” option).

2. You will need to use the “Create an Account” option on the right side of the following page. This is a Seattle Mariners Group Account (NOT a Ticketmaster account) and will consist of your e-mail address and a unique password that will enable you to order tickets for future Mariners events.

Note: If you have previously purchased through this system and already have an account created, please proceed with your existing account information.

3. You will be able to locate your seating, purchase your tickets, and print your tickets instantly- all from your home or office computer!

TO ORDER 25 OR MORE TICKETS (or if you require wheelchair seating):

• Please call Kristen Leetz at (206) 346-4504.

Bubbles and games

Skylar is so excited, he has figured out how to blow bubbles, Im pretty excited too, Ive been working on him with his control and blowing for years, and this is one thing he has never been able to do, until today

Skyler sporting his mosquito bite, nice place right between the eyes.

one of our new fav's, playing little big planet with his sissy, actually Moni plays and Sky gives orders, its very funny to watch and listen to, he is a bossy boss

Monis new finger nail art, so cute!!!!

Our sat at the air show

we loaded up and headed out this after noon to Arlington to watch the air show, and what an air show it was. We all had a blast, even in the heat. Thank God for the tents that offered shade, and for bottled water. We all had a great day!

Summer weather

Out for a walk this afternoon, sun is shinning so its a good day

What a Heat Wave, not

wow we were at 52 degs last night for fireworks, that meant winter coats and blankets, but we had a good time and braved the cold. Thank God our weather for the rest of the week is looking good, nice and warm (:

Happy Independence Day

Wishing everyone a safe and sane 4th of July.