Build a Bear and SMA

During the month of May Build a Bear has a special purple heart you can buy for $1.00, proceeds go to The SMA Foundation, to help find a cure. This is a great way to raise money for a cure and to help educate people on SMA, way to go Build a Bear!!!

First Day Of Pre School

Skylar had his first day of pre school on Wednesday, and he did so great! he loved singing and making animal sounds with the teacher. And he also enjoyed showing off a little, it was lots of fun. He will have speech this Wednesday.

We have ordered Skylars power chair, if all goes well we should have it hear in 3 or 4 weeks (YEAH) and we have also ordered a stander for Skylar, we cant wait!!! he has been doing so good with his loaner chair. he has been spending more and more time up each and every day. ( I Love it) And so does Sky....

Big Bug Hugs and Loves to everyone!!! Sheila

A Few New Pic

Happy playing with a Kraby Patty

Its my million dollar smile :)

Sleeping...

Up in my other chair playing with Spongebob.

Skys wheels....

Lost In Translation Winter/Spring

There is something wrong with this picture!!! Although, the cats dont seem to mind it...

Back to the norm

This past week was great, my big kids Moni and Chan were on spring break and Keith had 6 days off on vacation. It was nice to be able to do things in the yard and for Keith to work in his shop. It was just great to have everyone home. Now spring break is over and the big kids are back at school, Keith is already gone to work, and its just Sky and I... Its a little quite, I cant wait for Summer break. I love having everyone home. Wednesday is Skylars first speech therapy hear at the house, they will come and spend 45 mins with him every other week. So that will be fun... It was nice getting Skylar out of the house, but now our weather is acting yucky, I hope the sun comes out again soon, I bought Sky a kite and I cant wait for the weather to be nice so he can fly it. Also Ive been asked to be co-chiar parent in the 0 to 6 program hear in Snohomish county, the first meeting is tomorrow in Everett. But I just heard of the apt date today and will not be able to attend. Im excited as I will be involved with a very good community service group.

Beautiful Day For a Walk

Birthday Party Pictures

Some Decorations



Dale, Shelle, Kristen, Keith and Sky

Sky Plying the drums

Sky, Moni and Great Grandma

Ice Cream anyone???

A Happy Chan

Cake

Ready to party

Dad and his two Birthday boys

Skys elephant cake

cake and cookie

What A Blessing Skylar Turns 3

Skylar at the stroke of midnight, all excited about his Birthday, daddy and i got to sing him Happy Birthday!

Skylars 2nd Birthday

Skylars Birthday 4/4/05

Skylars 1st Birthday

April 4 2005 we were blessed a very healthy, happy little baby boy, who we named Skylar Dean, he came into this world at 6 lbs 13 ounces and was only 19" long. He was perfect!!! At age 11 months we found out about SMA, and were devastated. But what SMA didnt know, was that we were all fighters. SMA takes 50% of the children born with it before there 2nd Birthday, and there is no way to say how long a child will live. I call it the mother of guessing games (one I dont like very much) But what else SMA didnt know was beyond the diagnoses, was a family built of love and structure, and family that would do what ever needed to be done to protect and better Skylars life. Skylar is our little miracle, never would I have ever believed that one little child could teach so much... unconditional love is abundant in our home, in our lives... we see it each and every day as the cutest little person Ive ever known looks up at you and smiles, tells you he loves you and just enjoys each and everyday. Skylar Im so very very proud to be your mommy, and Im so excited to be celebrating your 3rd Birthday, I know there will be many more to come, and I can not wait to see what you have to show the world. We Love You So Much!!!!