GoodSearch.com

If Skylar and I could ask a BIG favor of everyone who reads this, please log on to www.GoodSearch.com This is a new search engine set up by FSMA (Family’s of SMA) every time someone anyone uses this search engine powered by Yahoo one penny is donated to SMA research to find a cure.

This is a simple FAST way you could HELP so many! A penny dosent seem like a lot, but if you tell someone and they tell someone, eventually that penny is thousands and more.

So PLEASE help us find a cure for SMA, and log on to www.GoodSearch.com

Thank You and God BlessSkylar and Family

Clear, Beautiful and Cold

We woke up this morning to a beautiful day, blue skies, snow covered trees and ice cycles hanging around the house. But it is so cold out, that Im not sure if the bigger kids will even be out in it today. Its now 10:30 and it is only 17 degrees outside. Anyways I hope you will enjoy this picture taken earlier this morning.

SNOW SNOW and MORE SNOW

Sky and his Blues Clues Chan after rolling in the snow

Moni shoveling snow (and 10 min later you couldnt even tell she did it)

The trees behind our house

WOW we have been hit hard with this lovely batch of winter weather, it has been snowing non stop since yesterday. We have a good 9 to 10 inches and they say we should look for 3 to 6 more... The big kids are enjoying it ALOT!!! Snowmen and snowball fights, they even got dad to pull them around on a sleigh. Skylar is happy as can be inside nice an warm with mommy, and all of our fun toys. The craziest part of all this was losing power for 5 hours this morning, boy can your house lose heat fast, we went from 74 to 67 in 4 hours. It was a bit nuts setting up all the battery powered equipment for mister Skylar, but we did it and we are all good!!! Scared dad a little so he ran out in the bluster and bought a generator... YEAH!!!! No when the lights go out, it wont effect Skylar and we still get to keep the TV and that means Spongebob!

Covered With Snow

It was a wonderful Thanksgiving for us at home with all the kids, we all ate like pigs.... Skylar enjoyed his turkey, mashed tatoes and gravy and cranberries. The excitement for the day is SNOW!!! And lots of it, it started around 1:00 and its still coming down....

The Coolest Chair Ever

I found this chair on line today, and showed Keith and he agreed we had to have it for Sky, so off he ran to Target. This isnt a bouncy seat, but a rocker... It is so cool and Skylar just loves it!!!

Thanksgiving 2006

Grandpa Ernie Great Grandma Frieda Sheila and SkylarGreat Grandma Freida Sheila and Skylar
Skylar and Auntie Kristin

Skylar all dressed up!!!

We had a wonderful Thanksgiving in Seattle with Sheilas dad Ernie and his wife Joyce. We visited with Kristin and Josh and Great Grandma Frieda. The food was wonderful and so was the company. The only thing missing was our Moni and Chan :(.... Sunday we will be together and have our very own Thanksgiving feast!!!!

Getting Ready For The Holiday

Say Cheese!!!!! Skylar can be so silly!!!!

Its been a busy week, Skylar will be getting his RSV shot next week and his second flu shot on the 4th of December. We have found some excellent shoes for him they are called hatchbacks... Very cool little shoes, I cant wait to we get ours in the mail.

Monica is already off to her dads for thanksgiving, and Chandler will be going to his moms tonight. So that leaves Skylar mom and dad for this years Thanksgiving. We will be heading into Seattle to celebrate with Sheilas dad Ernie and his wife Joyce. Then Sunday when our big kids get home we will have our Thanksgiving with each other, yep 2 Thanksgivings... Its kind of nice, because I love cooking big meals! I cant wait to celebrate with everyone tomorrow and Sunday.

We wish all of you the very best Thanksgiving, and for you brave enough to do Holiday shopping this weekend we wish you luck and sanity!!!

Fun Filled and So Lovable

Mama had me off that machine today for a while and we worked out the upper body... Was I ever sleepy after words... Nap time is always good when my sissy lets me snuggle in with her pony... I Love to cuddle with the pony... Thank s Sissy I Love You!!!!! Im in the kitchen with mama, and she keeps opening and closing those cupboards, how dose she do it, and man look at all the cool stuff shes got in there.....

Reading my Blues Clues book, I Love this book it makes sounds when you touch the buttons.

Thank You Melanie I Love this book so very very much!!! Your The BEST!!!!! Love Skylar

Mama Says Your Sweet Let Me See

Come here Daddy let me have one quick lick.... Yep she was right you are sweet!!!!!


Skylar is doing GREAT!!! We adjusted everything for the amount of humidity he needs a few weeks ago, and ever since, he has been doing great! The last few days we were hunkered down waiting for the storms to pass, and ready with our no-power equipment (just in case) but we didnt lose our lights, just a few flickers hear and there.


We are looking forward to Thanksgiving this year, we have so much to be Thankful for, were all home, Skylars improving daily, slow sometimes, but he is improving... Our older kids are healthy and daddy has a good job, mama works her bum off to keep everyone happy and in line. Its just so wonderful to know things are looking up!!! We are trully are blessed!!!

Nurse Melanie Came To Visit

It was a great day today; we had a fabulous visit from our favorite ICU Nurse Melanie. She brought gifts for all of us, Thank You!!! Skylar loves his Blues Clue.... It was so nice to visit and talk, we all hope she comes by to see us again soon!!!!!

Back From Our 18 Month Check Up

Skylar is doing GREAT! He now weighs 25lbs and is 33.5" long... The nurse Kim seemed very impressed with how he was doing and so did his doctor Brett. Skylar did just great until shot time, I dont think he enjoyed 4 shots, but he calmed down shortly there after and even feel asleep in the car on the way to get Monica and Chandler from school.

New Found Leg Strength

Yeah I did it and it feels great!!!! I Love to see my mommy smile like that, she looks so proud..... ( I am love bug I am)
Like the coban? His feet keep slipping so I put that on his feet to help give him a little grip... It works great!
And there you have it... He is holding his legs up, he loves having PT on his legs and hips, his resistance is getting alot better and his strength is increasing!!!!!
Oh the determination, can you see him thinking? How did my mommy get my blocks to stay on this? How did she do it???

A quick game of peek a boo with our big soft blocks, Sky loves when we stack them up and he gets to make them crash down, then he starts to restack them all over again...

I have been working with Skyar oh his strength ever since we found out he had SMA and even more since we got home from our 3 month stay at Children’s. Its taken some time and its not perfect, but it is a very BIG improvement. I am so proud of my little man.

Wonderful Weekend

Skylar and his Spongbob.... who would of ever thought that a sponge could bring so much happiness!!!!
Monicas loven up on her little brother... she is the BEST big sister in the world and as you can see Skylar just adores her so much!!!!
Looks like someone got into the candy bucket....


This was a GREAT weekend, Monica was home and that is always a treat!!!! She is the BEST!!! We all went out Saturday for our flu shots, then it was off to Everett to pick up our Montero, on our way home we stopped in to say hello to Grandma Helen. It was raining so hard when we left, that by the time I got Sky in his car seat and all ready to buggy down the road I was soaked. We had dad go pick up dinner Saturday night, Dennys sampler... cheesy but oh so good...

Grandparents Day

Today Monica and Chandler had Grandparents day at school. From what everyone said it was great. But it gave us a photo opportunity with Grandpa Ernie (Sheila’s dad) so I know 2 post in one day, put we couldn’t resist.

Mommys Picture picks For The Week

Here is mama and I playing with that camera, we had so much fun just taking pictures, we were laughing, mama took so many funny pictures, but I like this one best!!!!

Oh man, I went to bed last night with a little animal in my arms and when I woke up I had this HUGE SpongBob next to me... Mama says its the SpongBob fairy, but I know it was my daddy... Thanks Dad I Love Him LOTS!!!!!
And here I am, can you say cute.... Mamas always saying that Im a handsome little man!!!!!