FSMA greenlake Walk n Roll

 Thank You Shelly for the balloons!!!!

 Grandma and Grandpa Rosengren, shelly and Dale, Kenzi, Keith and Sky, Sherie and Jacob

 on our way home we ran by the air field to look at the airplanes, fun!

Great day for a walk, our weather was a little cold but it did not rain!!!!  Sky had a blast walking with his family and friends today.  Thank you all who came out and for all of you who donated to FSMA, in all we raised $770.00 not bad for our first walk!

Just in time

Skys stroller came today and just in time for our walk this weekend!  He loves it (so do I)

Greenlake Walk n Roll

Our walk n roll is fast approaching, only 4 more days..  Please join our team and show your support to Skylar and all of his friends who live and breath SMA every day!!!  For those who have joined our team or donated (YOU GUYS ROCK)!!!!!  Cant wait to see everyone on Sunday!!!!

http://www.fsma.org/LWC/dsp_donationPage.cfm?idEvent=6209&idUser=10535#.TpW2xwoxvp_.facebook

Pictures

 Sky on Sunday, starting to feel better

 trying to find his smile

 yesterday afternoon, other then the nose candy, he is 100%

Mr Man a few mins ago showing off his new Woody figure, that daddy sure knows how to make a kids day!

CRAZY week

Last Tuesday Sky came down with a tummy bug, this was a first for him, and wow!  I have never had a tummy bug, not even as a kid so I had no idea what was to come.  Poor kid never ever threw up as a baby, so this to was a first for Sky, and Ill just say he was not impressed!  He did ok the first few days with eating and staying hydrated but that came to a screaming halt Friday.  So when daddy got home I placed an NG (feeding tube)  down Skys nose.  Now he was not to happy about that, but Im pretty sure he is grateful that I did.  The other day he told me mama Thank You for feeding me!  I know what a kid...  So today is day 5 with the NG and Sky is doing amazing!  He feels good, looks good and has had a great day!  Now comes the task of getting him to eat on his own again, I cant just take the NG tube out, not until he can eat orally all of his daily needs, so we are looking at a few weeks (I think)  slow and steady wins the race in this house!  Most of all, Sky never fails to impress me, his strength and will and love is just wonderful!

Pictures!

 1st day of school, 11th grade oh my!!!

 Sky kicking my butt at candy land

 and yes he likes to win!!!!

 crazy day, we had about 5 ot 6 blue birds on the deck enjoying some dog food!

 all he wants for Christmas is his two front teeth!

Sky and I

so what have we been up to?

School has started, Moni and Chan are juniors, one more year and they graduate!  Sky has started his home schooling, we started yesterday with just a little refresher.  This kid is so smart, I just love it! 

Sky has been to see his pulmo, and he looks great and sounds great!  his pulmo just cant get over how well he has done!  Makes this mama feel pretty good!

We have been dealing with insurance, or the lack of I should say....  I am not impressed with these people, but seriously what can I do?  Praying we will have all of Skys new equipment in a few weeks!

We have been getting ready for the Walk N Roll at Greenlake in October, that is going to be so much fun!  I have some awesome family who no matter what have always been there for me and my family, and Im so proud to have them walk with us, team Sky is going to be HUGE!

Sky has been playing his little big planet with Jojo, this has become a highlight of his day.  The boys build things and destroy things, its pretty cool to see him interact, even if Jojo is in LA.  I love it!

Sorry no new pictures, I seem to have misplaced my card reader for my computer, sure hope it turns up soon!  Id like to dump my camera!

Please help our little friend Alli

http://goo.gl/4uKCf

Team Sky

http://www.fsma.org/LWC/dsp_donationPage.cfm?idEvent=6209&idUser=10535

please help us to reach our goal to help find a cure for SMA!  we look forward to walking with everyone on the 16th of October!

Any and all 4th Annual Cure SMA Seattle Walk-n-roll

4th Annual Cure SMA Seattle Walk-n-roll

	Sunday, October 16 · 10:00am - 1:00pm
	Bathhouse Theater, Greenlake Park 7312 W. Greenlake Dr North Seattle, WA 98115
	Pacific NW Chapter of FSMA
More Info	Registration is ready to go!! www.fsma.org/seattlewalk

kittens

                                                                              Tom if it were up to me he would be named Speck.

Speck and he would be named Slash

so today I did go to NOAH and get two 6 month old kittens, the white one is now named Tom and the tabbie is now named Speck, the white one is very friendly and has warmed right up the Speck is warming up but a little freaked out by the dogs....  he will figure out they are nice soon enough, Sky just loves them!

wow

i guess Im getting bad at updating!  There really has not been much going on.  Everyone is doing wonderful and we are all good, enjoying the little bit of summer we have or had.

we still have not heard from our insurance on nursing, and we ordered new equipment for Sky, sure hope they dont long to getting him what he needs.  If we were to buy what he needs out of pocket it would be over 35,000.00  (crazy huh?!?!)

Sky has been enjoying his online game playing with his friend Jojo, he looks forward to playing online with him every day, now if I could just figure out how to join them to play we would be set!  Im not the best game player !!!  but I try....

we went out yesterday to do some fun shopping but after we got into the store Sky got a big buggy and his suction machine thought it would be a good time not to work correctly, so we did the best we could with what we had, cleared him as much as possible, and headed home asap....  he is good and enjoying the new toys daddy went back to get!

today I am heading to NOAH, its an animal shelter about 2 miles from us, Sky is certain he needs a kitten so he can name it Tom!  Got to love this kid~

Last night we lite our candle for SMA, for all the wonderful kids we know like Sky who fight each and every day to just be kids!  and for those precious kids who have lost the battle to SMA...  May we find a cure, is all we ask and all we pray for!

so where is summer?

I am starting to think that we may not have summer this year, its still cold every night that you can see your breath and as of this past week our high has been 66, look out we are having a heat wave (not)...  I sure hope it picks up soon, there is so much going on in our community over the next few weeks and Id really like to get this kid of mine out and about, and we will but it would just be a little better if we had clear blue skies to do it in!

we have been busy, Chan and Moni and all of there friends have been keeping us on our toes.  I can honestly say they are having a great summer!

So is Sky, we have been going out here and there and actually took him to see cars two last week.  He loved it, and he was so darn funny...  he could not get over the size of that TV.  What a kid!

 got to wonder about this mosquito bite, yep it is in the shape of a heart!?!

Arlington airshow

we had a great time at the airshow this year, Sky loved it!